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Learning to See Invisible Children
Inclusion of Children with Disabilities in Central Asia

Edited by Martyn Rouse and Kate Lapham

Martyn Rouse is Professor Emeritus at the University of Aberdeen in Scotland, where until his retirement, he was Chair of Social and Educational Inclusion and Director of the Inclusive Practice Project.
Kate Lapham
is a Senior Program Manager for the Open Society Education Support Program and has worked in Central Asia since 2004. She has worked on education programs in the former Soviet Union since 1997.

The volume contains six case studies that address a significant aspect or specific phenomenon in the local context of inclusive education or social inclusion in Kazakhstan, Kyrgyzstan, and Tajikistan. The cases raise a number of questions relating to the purpose and nature of schooling, about who should have access to schools and how such access might be negotiated. These cases also ask questions about the respective roles of policy, parents, civic society, advocacy groups, professionals, NGOs, and government agencies. It considers how notions of disability are constructed in the region. In particular it looks at some of the ways in which the Soviet legacy of defectology still informs policy and practice today.


Acknowledgements; Introduction, Martyn Rouse and Kate Lapham; 1. Tradition, Stigma, and Inclusion: Overcoming Obstacles to Educational Access in Tajikistan, Benjamin Gatling and Manzura Juraeva; 2. Out of the Shadows: The Work of Parents in Inclusive Education in Tajikistan, Christopher M. Whitsel and Shodibek Kodirov; 3. Parent Activism in Kazakhstan: The Promotion of the Right to Education of Children with Autism by the Ashyk Alem Foundation, Mariana Markova and Dilara Sultanalieva; 4. Fools Rush In: A Path to Inclusive Education in Petropavlovsk, Kazakhstan, Nils J. Kauffman and Larisa Popova; 5. Raising Children without Complexes : Successes and Shortcomings in Implementing Inclusive Education in Northern Kyrgyzstan, Cassandra Hartblay and Galina Ailchieva; 6. Community-based Services in Kyrgyzstan: Umut Nadezhda Rehabilitation Center, Anastasia Kokina and Nina Bagdasarova; Conclusion: The Road Ahead, Kate Lapham and Martyn Rouse; List of Contributors; Index

Published by the Open Society Foundations, distributed by Central European University Press

204 pages, paperback
ISBN 978-615-5225-67-3
$24.95 /€22.95 / £18.99